Summarizing briefly, and maintaining privacy for the House of SuperNerd, while keeping everyone filled in, Tiny Princess is still with us in this world, spreading joy and love.
As stated previously, she has serious, irreversible complications, mostly above the neck. There were bad seizures on Monday, at which time it was decided to give Tiny Princess emergency Confirmation. Many people have inquired – yes. That is done. Happily, the seizures came under control with medication, and now that Tiny Princess is no longer attached to a dozen-plus wires and tubes, SuperNerd and SuperMommy are all about maximizing snuggle time. Whether snuggle time lasts days, weeks, months, or even past a year is anyone’s guess. As many people have said in incoming emails, preemies and babies with birth defects are well known for being given a diagnosis or timeline, and then responding with, “Hold my bottle….”
SuperNerd’s new job has told him to take all the time he needs, and the community has organized a meal-prep rota that is covered all the way into May, so SuperNerd and SuperMommy can be at the hospital as much as possible.
We will conclude with SuperNerd’s own words:
“It is such a huge consolation to us that she’s both Baptized and Confirmed and ready to be called to her Eternal Home. When I close my eyes I expect to open them to see light emanating from her and filling the room with brilliance in the same way she is filling her mother and me with a capacity for love that I didn’t know I had previously.
I would be remiss if I didn’t thank everyone for the generous out-pouring of prayers, food, and babysitting assistance. Given that we don’t know how long we have with her, we are trying to take advantage of every moment to be with her and witness the amazing miracle of life in ways we’ve not seen or contemplated before. Thank you to EVERYONE who is helping to make that possible for us! You are all in our prayers and we owe you all a debt of gratitude that we know we can never repay; the best we can do is humbly implore God to repay you from His infinite treasury!”
Her Serene Highness the Princess Tiny von SuperNerd und Snuggles